Knowledge Hub
Knowledge Hub
Free, evidence-based resources for patients, families and health professionals navigating neuroendocrine cancer in Aotearoa New Zealand. Written in plain language, reviewed by clinicians.
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ToolA free, anonymous, NZ-specific 3-minute symptom check. Get a printable summary to take to your GP.
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BookletThis booklet has been developed to provide information about neuroendocrine tumours (NETs) for patients and their families.
ToolHelp with travel and accommodation costs for NET treatment in Aotearoa – Te Whatu Ora's National Travel Assistance scheme, NECNZ hardship support, and how to apply.
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ToolNeuroendocrine Cancer NZ offers a hardship fund to provide a small amount of financial support for patients in the greatest need.
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ToolWork and Income’s Special Needs Grant can help cancer patients cover essential or emergency costs they can’t afford.
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ToolMental-health support for people living with neuroendocrine cancer – options across Aotearoa, including free helplines, counselling, and peer support.
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There are various types of scans that may or may not be suitable for your type of NETs. Here is a summary of some scans you might encounter.
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What G1, G2 and G3 mean for a neuroendocrine cancer diagnosis – plain-language explanation of grade, Ki-67, and how they shape treatment options.
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Neuroendocrine Tumours (NETs) is an umbrella name for a number of different types of tumours, which can arise in different areas of the body. It can be…
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VideoThis page hosts a series of recorded information sessions from our past education days and Zoom-In sessions
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BookletPatient guide to peptide receptor radionuclide therapy (PRRT) for NETs.
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Treatments for neuroendocrine cancers vary from person to person and may be one or more of the options listed below.
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ToolPlain-language definitions of common neuroendocrine tumour (NET) terms — for patients, whānau, and care partners. Updated as new treatments and tests come into NZ practice.
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Supporting nurse participants to understand NETs treatments, management and latest developments in research.
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Providing up-to-date training and resources helps HCPs better support patients through this complex and often misunderstood disease.
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The FDA is expected to decide on ITM-11 (177Lu-edotreotide) for GEP-NETs by 28 August 2026, based on the Phase 3 COMPETE trial results.
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ToolPractical nutrition tips for managing carcinoid syndrome – from the NECNZ Nutrition for NETs guide.
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ToolNutrition strategies for managing constipation when living with neuroendocrine cancer.
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ToolToolkit of practical food, fluid and lifestyle steps for managing diarrhoea with NETs.
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ToolGeneral eating-well guidance for people living with neuroendocrine cancer.
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ToolPrintable diary for tracking food, fluid and symptoms – useful to share with your dietitian or NET specialist.
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ToolNutrition tips for easing nausea and vomiting symptoms when living with NETs.
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Focusing on diet and healthy eating is important for people living with NETs
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ToolFood and drink advice for the lead-up to a urinary 5-HIAA test.
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