Aotearoa’s NET community
You are not alone with NETs.
Free patient information, peer support and advocacy for New Zealanders affected by neuroendocrine cancer. Built by patients, for patients.
How we help
Three pillars, every day, for the NET community.
We provide patient information, peer support and advocacy in Aotearoa New Zealand. All free. All grounded in lived experience.
Patient information
Plain-language guides, symptom toolkits and clinical PDFs written for newly diagnosed Kiwis and their whānau.
Browse the Knowledge HubPeer support
Connect with people who get it — patients, families and bereaved relatives — through Zoom catch-ups and one-to-one calls.
How we support youAdvocacy
We work with Pharmac, Te Whatu Ora and clinicians to improve diagnosis and access to treatment for NET patients.
How to get involvedPatient stories
Real Kiwis. Real journeys. Shared so you don’t feel alone.
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Could it be NETs? – Free symptom self-check
A free, anonymous, NZ-specific 3-minute symptom check. Get a printable summary to take to your GP.
Read story →
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Patient Guide
This booklet has been developed to provide information about neuroendocrine tumours (NETs) for patients and their families.
Read story →
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Transport Assistance
Help with travel and accommodation costs for NET treatment in Aotearoa – Te Whatu Ora's National Travel Assistance scheme, NECNZ hardship support, and how to apply.
Read story →What your support makes possible
- 8
- Kiwis diagnosed with neuroendocrine cancer every week
- 350+
- New Zealanders with NETs we connect with each year
- Free
- Peer support and patient information, always
Stay connected
Quarterly updates from the NET community.
Patient stories, new resources, advocacy wins and what’s happening across Aotearoa.
We don’t receive government funding.
Every gift keeps the patient-support work going. NECNZ is a registered charity (CC49802) — donations over $5 are eligible for a 33⅓% tax credit.